If I were to speak with or write a letter to chronic fatigue patients and their physicians I would want to put in that letter the very latest information from researchers and highly regarded physicians. Some of the information may be gleaned from the results of a think tank. A think tank is an organization or group of experts researching and advising on issues of society, science, technology, industry, or business. They are opportunities for learning. A think tank may be organized in order to conduct intensive research or to solve specific problems. During the dates of March 16 - 18 of the year 2000 a think tank was formed in Reno, Nevada. This is the spot where the 1984-85 outbreak of Chronic Fatigue Syndrome occurred. Researchers and Physicians participated in the two-panel event. Nancy Klimas, MD, of the University of Miami, oversaw the Panel. The think tank's purpose was to address the disease by studying and assessing treatment and scientific findings surrounding the disease; so that they could make recommendations on how this information could be useful to those treating CFS patients. The information that came from this think tank is beneficial to both physicians who treat Chronic Fatigue Patients and to the patients themselves, whom can now better understand their own symptoms. The panels made recommendations based on their study. What follows is a brief summary of some of those recommendations.
Recommendations General Physician Suggestions It is suggested that physicians who treat CFS patients should be trained in diagnosis, treatment. It is also important for physicians to be knowledgeable regarding disability claims so as to assist their patients in filing for disability. Physicians need to be aware of the dangers of CFS patients donating blood, as this could compromise their possibly already low blood volume. Physicians should also be made aware that using live vaccines could pose a risk of relapse and should be avoided. Goals Concerning CFS During the treatment planning stage all efforts should be made to address therapy centered on the needs of the patients daily living routine. Daily tasks like household chores, meal preparation and other tasks normally done in the maintenance of the home life may pose fatigue and pain issues. Therapy would be able to address how to accomplish these tasks in such a manner as to alleviate as much as possible any aggravation of these symptoms. The overall goal of therapy is to address not only accomplishing these daily tasks but to improve the patients function capabilities. One goal that can be overlooked is the one to maintain social contact, especially in young patients. Managing Fatigue Suggestions that were made to enable CFS patients to better cope with the fatigue issues were to strive for a balance between physical activity and rest, making use of supportive equipment in doing tasks, and setting priorities when planning daily tasks. There are many adaptive devices available that can aid a patient in accomplishing daily chores that will take away some of the energy output needed to accomplish the tasks. Early Intervention Initiating therapy in the earlier onset of the disease can help minimize the biological effects of the disease. Early intervention can help improve patient's function. Rehabilitation Rehabilitation programs have been more successful the earlier they are started during the course of the illness. Speech therapy has been shown to help treat Chronic Fatigue Syndrome patients' cognitive dysfunction, in areas such as word finding, memory and information processing.
Chronic Fatigue Syndrome Advances01/11/2012FDA Grants Hemispherx Extension In NDA For Treatment Of Chronic Fatigue Syndrome FDA Grants Hemispherx Extension In NDA For Treatment Of Chronic Fatigue Syndrome FDA Grants Hemispherx Extension In NDA For Treatment Of Chronic Fatigue Syndrome 01/26/2012 Surveying Siberia on 70-year-old bike A London surveyor is celebrating his return to health after battling chronic fatigue by crossing Siberia on a motorbike in temperatures as low as -60C. Surveying Siberia on 70-year-old bike 02/08/2012 Weighing a Big Decision? Take Your Time To understand all the consequences of an important choice takes time and attention--even if it's hard to come by. I've written before about the importance of sleep . Tired brains lose their capacity to think critically, to evaluate data, and to understand the meaning of evidence. But chronic fatigue in the workplace isn't the only invisible risk we run daily. So too is speed. I know, I know: We ... Weighing a Big Decision? Take Your Time 02/08/2012 ME sufferers call for help Thousands of people across Northern Ireland suffer from ME, also known as Chronic Fatigue Syndrome, but they say there is not enough medical help in the region. ME sufferers call for help 02/08/2012 Obesity Linked to Worse Fibromyalgia Symptoms WEDNESDAY, Feb. 8 (HealthDay News) -- Obese people are not only at greater risk for fibromyalgia, they are likely to experience more severe symptoms of the condition, such as chronic pain, fatigue, sleep disturbance and mood disorders, according to a new study. Obesity Linked to Worse Fibromyalgia Symptoms 02/07/2012 Review under way into ME service Cornwall's chronic fatigue syndrome (ME) service is being reviewed following the retirement of the head of the service. Review under way into ME service 02/08/2012 Weighing a Big Decision? Take Your Time To understand all the consequences of an important choice takes time and attention--even if it's hard to come by. I've written before about the importance of sleep . Tired brains lose their capacity to think critically, to evaluate data, and to understand the meaning of evidence. But chronic fatigue in the workplace isn't the only invisible risk we run daily. So too is speed. I know, I know: We ... Weighing a Big Decision? Take Your Time |
